Any one out there have Porhyria Cutena Tarda ?

Share your ice chewing stories.

Any one out there have Porhyria Cutena Tarda ?

Postby IcewomanCA » Thu Jan 26, 2006 3:36 am

This is a rare disease that affects your body when you have to much iron...so the way to help that is to have blood draws done until they make you anemic...which is about 1 pint drawn every week for me...after the third one the ice chomping starts...and it's really bad. We have an ice maker with our refrigerator..and it can't make enough ice fast enough for me....hubby is always telling me to stop.....if only I could. Just hoping there is someone else out there with the same problem. I can't take iron I'm a spammer who can't get a job. Also, our product sucsk - don't buy from us. because it makes my Porhyria crazy.....lucky me...LOL
IcewomanCA
 
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